By Simon Pursey
13 January 2009 – The day my beautiful daughter princess Amily was born. I remember the day very clearly – in fact it’s etched onto my brain. I was sitting in the car, listening to the radio, and the Jim Reeves song Welcome To My World started playing. It was like a sign from the heavens, signalling the start of an amazing and fulfilled life.
What we weren’t expecting were life-changing complications when Amily was born. Her photo shows a cheerful young girl, but at a early age we were shocked to be told that some of her facial features, for example the widening of her eyes, the lowering of her ears, her slightly larger than average mouth, were indicators of a child with a genetic condition – but no one could tell us what that was. Initially, the many doctors we saw thought it was autism.
Estimates suggest that one in 100 people in the UK have autism
Four times as many boys as girls are diagnosed with autism
The number of diagnosed cases of autism has increased over the past 20 years, thought to be due to better diagnosis
There is no cure but there are a range of interventions available
For 4½ years we searched for answers, trusting the medical profession when they told us they couldn’t make a firm diagnosis. It was a really difficult time. We spent hours trawling through mountains of information on the internet, our minds going into a paranoid frenzy. We felt lost and helpless.
Posted by Linda Bloor
October 30 2013